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Submission SUB-B3F0-000969 (Joanne)

Submission reference
Individual's name
Submission type
General submission
What are your three main problems or concerns with the NDIS?

Hard to access, due to having a fluctuating disability.
Reports having to be worded to precisely as too avoid being turned down.
Access being denied due to budget constraints.

How do these three main problems affect you and/or others?

Fluctuating disability that may get better but then relapse not seen as a true functional disability.
Having to pay for expense reports just to find that key words are missing, so turned down.
Stress of being turned down multiple times, cost involved to mental haealth in trying to access .

What do you think are possible solutions to those problems?

It's important to realise that conditions such as FUNCTIONAL NEUROLOGICAL DISORDER are real, painful and awful conditions to live with. That people are desperate for help. So a recognition of mental health and functional conditions are just as debilitating as other organic based conditions.
So there should be access stream for those people that come under mental health and functional disorders.
Access to OT and Physios that can help with providing subsidies reports.
Having NDIS work directly with charities and NGO that know about these conditions and what help suffers need.

What parts of the NDIS are working well for you?

I was lucky, I had good reports and access first time.
My plan has enabled me to join back in to society. It's given me purpose.
My plan is managed by a plan manager. I am grateful for this as it would be to stressful to manage myself. My plan has been in place for 2 years so it's given me some security.
It's also been flexible, and made to my needs.

Is there anything else that you would like to tell the NDIS Review?

Include a pathway for for those with conditions such as ,chronic fatigue, FND, PNES and any other functional ir mental helath disorders.

Make the appeal process easier and less stressful to access.