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Submission SUB-B5W1-000742 (Anonymous)

Submission reference
Submission type
General submission
What are your three main problems or concerns with the NDIS?

1. LAC not knowing the rules/NDIS ACT
2. Technicalities around psychosocial disability and what the NDIS will & won’t fund regarding psychological interventions
3. No clear guidance for practitioners to write reports nor exactly what can be funded

How do these three main problems affect you and/or others?

Funding from one year to the next changing drastically.
Increase distress and psychological crisis which then causes more financial strain as I need more support but support was decreased.

What do you think are possible solutions to those problems?

1. Clear and consistent funding.
2. Clear templates for practitioners/providers to do their reports on
3. LAC and NDIA representatives having better knowledge of disabilities as well as actually reading the reports from specialists/practitioners. For example my Pain Specialist stated due to my PSTD I could not undertake pelvic physiotherapy yet NDIA gave me 12hrs of pelvic physiotherapy. NDIA also gave me 3hrs to undertake an assessment from a continence nurse as I wet the bed from nightmares - again if the NDIA had of read the reports they would have known this would cause me more distress as well as a continence nurse cannot do anything for me having nightmares which then cause me to wet the bed. My Pain Physician, Gynaecologist & Psychologist are more than adequately qualified to assess this issue and as it relates to PTSD for extreme & long term sexual abuse, having me assessed by a new provider from me is inappropriate and traumatic.

What parts of the NDIS are working well for you?

NDIS app.

Is there anything else that you would like to tell the NDIS Review?

The NDIA representative stated on the cover letter that she had spoken to me - I did not have any conversation or dialogue from anyone from the NDIA/NDIS regarding my new plan.
The process of plan reviews are extremely stressful, causes me extreme stress and also causes me to go into crisis where the mental health system cannot assist as it is already stretched.
In my plan review it stated that I should be using the public mental health services for treatment of my psychosocial disability - PTSD and use Medicare for GP mental health plans. Public mental health services won’t take me as a patient long term as I am not ‘acute enough’ and GP mental health plans have been dropped to 10 per year - leaving me out of pocket for those plus I am only funded for 16hrs under the NDIS for psychology.
Due to this and the fact the LAC chose my goals and how I would meet them, I am now having to go the another review which could leave me with less funding as well as use up the current new funding.
NDIS reviews and incompetence from LAC and NDIA representatives will cause people to suffer further and put peoples lives at risk either due to suicide, isolation, inability to work and be financially stable.