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Submission SUB-B7M7-002046 (Mary Kemp)

Submission reference
Individual's name
Mary Kemp
Submission type
10 areas for improvement
How can we empower you through the planning process?

Applying for the system is a mine field in itself.
Once in the system, it's still a mine field. The system is very stressful, confusing to try to use. Support and assistance is hard to come by.
The system seems like a scam. NDIS continues to keep changing the rules whenever they feel like it without informing the clients. Funding keeps coming out of my plan but I'm not seeing the items that the funding is meant to be doing.
Make the system easier to use. And make sure that they work.

What is the best way to provide supports for those not in the NDIS?

Do a better job with making the system work. It's unfair to miss out on help that is required because this system is broken ??.
I'm with the system but yet I still have to spend my own money (that I can't afford to do so) to get items that I need because your system takes too long. I've been waiting for 2 rails on steps and it's taken almost 2 years and many falls down my back stairs and currently still waiting. Was told my scooter had been approved back in August/September last year and I'm still waiting for it.

How you would define reasonable and necessary?

If you need it to make your disability easier, it should be classed as reasonable and necessary.
How about stop wasting my funding as it's not me that's ripping off the system.

What is the best way to support children with disability… and those with emerging developmental concerns?

Disabilities aren't just affecting adults, so again fix the system.
Talk to the families with children that need help then you will know what is needed to help

How can the market be better designed, structured and supported?

Every person is different and it should be case by case not just bunched altogether.
Have people that know what they are doing to support the person they are with at the time

How should outcomes and performance be measured and shared?

By reports and notes etc.
Information needs to be clearer to understand and put into terms that most understand. Remember we are not drs and don't understand the technical terms, make it easier for clients

How would you build better outcomes or goals into your plan?

Stop taking out items that are/were in our contracts when they have been there since signing up.
How is it that you can talk to someone once (that you've never meet you or understands what you are going through) and they think they know what's best for you?
So my goals keep getting taken out or "told no I don't think you really need that at the moment". It really should be the same person who does your review each time, that way you know the person that you're dealing with and you don't have to repeat yourself all the time. The lady that did my last review I've never meet and she never seems to be contactable.
The system is designed shitly and really needs to be upgraded so people aren't waiting years for items.
I still don't understand how funding can be charged from when you don't receive the actual items. Or to use the funding for something that is required but then when the money is spent to be told "NO SORRY YOU CAN'T HAVE THAT NOW AS NDIS HAS CHANGED THE RULES". How can something be in progress and then told that I now can't have it even though the funding was spent to do so.

What does good service from someone helping you navigate the NDIS look like?

Being able to understand the system and how it actually works. Being able to actually log into the platform that is paying the bills.

How should housing and living options be improved to build a good life?

To be able to have items I can use safely, like a shower that I can actually use. Build more facilities for the disabled. Security in the home that I live in so I'm a little more safer. Information on what services are available and around the local areas.
Stop wasting funds on items that aren't needed and actually check with the client before making a decision on an item.
Stop charging excessive prices on the items. Like you can't tell me that an over the bed table through NDIS is over $600. Considering that you can pick them up for $80 which is what I paid out of my own pocket for one as was sick and tired of waiting for NDIS to help.
Why do they not take everything into consideration, considering that everything that is wrong with me is due to me having my stroke but yet I'm only able to use it for bits and pieces that are wrong with me? Please explain how that works.

How should the safeguarding system be improved for a better NDIS?

They need to communicate with each other.
Companies (like Geelong taxis) not to give out your personal information to people that don't need to know (like their partners, friends or family)

Is there anything else that you would like to tell the NDIS Review?

Stop wasting my funding. Stop ripping off the system. Start helping those with disabilities to have a life.
I want the things back in my plan that have been there from when I first signed up and then for some reason all of a sudden they were gone. I want my bathroom renovation (that I need so I can bath safely) completed since my funds were used for it but I never got my bathroom (because NDIS apparently changed the rules while it was in progress). Stop taking so long to approve and deliver the items. Stop changing the rules all the time, if something is in place to be done or is almost completed finish the project/job. Don't use funds for item's that I then get told that I can't have, but the funds were used. Do the job at hand completely or refund the money used, SIMPLE.
You've had over 10 years with the system, so fix it.