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Submission SUB-C2C6-000497 (Anonymous)

Submission reference
SUB-C2C6-000497
Submission type
General submission
What are your three main problems or concerns with the NDIS?

1. Access Request Catch-22 trying to provide sufficient supporting evidence for Access when the evidence should be generated by NDIS-funded OTs etc once someone is admitted to scheme even without all existing impairments assessed, if at least one impairment is sufficient for basic access.
2. for Plan-Managed, the Portal should display full name of provider not just ABN to simplify purchase reimbursement reconciliations.
3. Most important, the many current systemic NDIS problems are well-known & documented by peak bodies like DIsability Intermediaries Australia, Carers Australia etc.. so their issues lists should be merged & made public by the Review to avoid tens of thousands of busy carers having to duplicate that effort. Carer input should be limited to commenting on the merged published lists.

How do these three main problems affect you and/or others?

problem 1. After several years I'm still fighting to get a middle-aged profoundly disabled & seriously unwell friend onto the NDIS despite over 22 medical reports. This effort detracts from my primary carer role for my own disabled son but I'm doing this because it's morally the right thing to do as he missed the Transition window to automatically cross over to the Scheme since he wasn't a Defined Participant at the time in spite of disability & illness.
problem 2. Too many hours wasted trying to work out what a NDIS claim reimbursement was for. Also makes it harder to spot overcharging & bad practices.
problem 3. NDIA seems to be following Divide & Conquer strategy by requiring the same systemic problems to be escalated by every individual carer at great personal cost in time & stress. This can only be interpreted as Strategic Inefficiency to actively discourage claims & reduce number of people entitled to support. Since the LACs are also overloaded people whjo fall thru the cracks are often left with nowhere to turn to.

What do you think are possible solutions to those problems?

Problem 1. Change the Access assessment process to allow a (new) lower-level time-limited Assessment NDIS access with quite limited Plan funds just to cover supporting evidence costs to allow full assessment to occur, for those participants on DSP etc who cannot otherwise afford getting the medical reports.
Problem 2. In NDIS Portal display Service Provider name as well as ABN.
Problem 3. peak national bodies like DIsability Intermediaries Australia, Carers Australia etc.. NDIS systemic issues lists should be merged & made public by the Review to avoid tens of thousands of busy carers having to duplicate that effort. Carer input should be limited to commenting on the merged published systemic issues lists, and adding any other issues not picked up the lists.

What parts of the NDIS are working well for you?

Personally my son's plan is now going quite well. As a result he's been able to get part-time employment, stay employed, and now looking at increasing his paid work hours to try to meet his Centrelink Job Capacity target. After a lot of very painful trial & error we now have great Support Coordinator & Plan Manager. I'm starting to go thru the whole cycle again as our 2nd child recently diagnosed with disability. Hopefully this time around the access process might be easier.

Is there anything else that you would like to tell the NDIS Review?

This online survey is well-designed and easy to do. Shows me that your intentions are sincere and that you're really listening. The language, culture & mindset shifts from the Minister down is probably as important as any procedural and policy changes. I imagine the NDIA staff are also keen to see these changes happening and will hopefully also make their jobs less stressful & adversarial.