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Submission SUB-C2T3-002072 (Anonymous)

Submission reference
SUB-C2T3-002072
Submission type
10 areas for improvement
How can we empower you through the planning process?

Just finding who to call, where to start, what form to fill out, where to find supporting therapists who are available is an absolute nightmare! I think people within NDIS think it's simple because they know their own website and jargon but from the outside it is an absolute minefield to understand blindfolded!

What is the best way to provide supports for those not in the NDIS?

A lot more medicare supports for those with diagnosis, clearer guidance into NDIS, increased access to community health services for low income families.

How you would define reasonable and necessary?

Using these definitions relies on a deficit model to compare a persons capacity to another person. It's unkind. It should be based on the degree of help needed to get a person to a livable state or to their goals (ie. within the areas already defined of health, social, self care, etc). and how much help is needed to get them there. Can the person self access it. Can the goal be 'reasonable met' with only 10 allied health medicare funded sessions?

What is the best way to support children with disability… and those with emerging developmental concerns?

Early intervention is still relevant but please don't expect or promote it as a 'cure'. Cutting people off from therapy (funding) at 7 or now 9yo is really arbitrary. Why in the world would a person with a disablity suddenly stop needing help when they turn a certain age?
Also, when you write into plans that parents have $X for speech and $X fr OT some parents think they have no option but to use that finding for those things, even if you have funded therapies that were not requested! When you provide the plan you need to educate about how to use it and its flexibility.
Please also stop undervaluing the flexible skills of therapists (e.g. dietitians consudting feeding therapy).

How can the market be better designed, structured and supported?

Hard to find availaible therapists. Some families accessing more than one of a therapy (e.g. two speechies etc).

How should outcomes and performance be measured and shared?

As they are now. Perception of therapists and parent. Behaviour change is never linear. People should not lose access because they are still working on a goal or have had to change approach. The idea that a person will attend 10 sessions and be 'fixes' is ludicrus. Is you will only be finding certain things for a limited time, you need to be much much more up front about that. Many families will only access therapy for the amount of thime it is funded for.

What does good service from someone helping you navigate the NDIS look like?

Someone contacting me to check in before I have to find them. A service who gives consistent answers each time they are contacted.

How should the safeguarding system be improved for a better NDIS?

I really think the biggest problem is access. I think NDIS funding should be like Medicare where funding pays for a certain amount of the session and you pay the gap out of pocket. This would help with engagement and commitment to the process but also relieve a lot of the financial burden for families in need of supports. A lot of families act like NDIS is free money. I'm happy to pay for a portion of each session I attend but I really really can't affort all of the sessions and supports I need. I could pay a gap. I think others could and would benefit from the same. This would also allow the NDIS funding to stretch further.

Is there anything else that you would like to tell the NDIS Review?

I really think the biggest problem is access. I think NDIS funding should be like Medicare where funding pays for a certain amount of the session and you pay the gap out of pocket. This would help with engagement and commitment to the process but also relieve a lot of the financial burden for families in need of supports. A lot of families act like NDIS is free money. I'm happy to pay for a portion of each session I attend but I really really can't affort all of the sessions and supports I need. I could pay a gap. I think others could and would benefit from the same. This would also allow the NDIS funding to stretch further.