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Submission SUB-C3L3-001195 (Anonymous)

Submission reference
Submission type
General submission
What are your three main problems or concerns with the NDIS?

1. I feel that Autism is now being made the scapegoat for all the scheme's problems and the impact on those people with Autism is that they are again being made to feel that they are of no worth to our society, just like it was in Victoria when it was not even considered worthy of disability funding.
2. The lack of staff competence - we had to go all the way to AAT due to staff not knowing their own act or the transition arrangements for my daughter's first plan and the impacts of that on an Autistic person has been permanent. Disgusting.
3. The inability of the NDIS to have a client focussed approach to requests for reviews, it should be a right that is respected rather than the current approach of dragging stuff out until they stress either disabled people or their families to give up. The NDIS needs to develop more care and a longer term view. I suggest that if you give the current crop of children and young adults and their families the right levels of support, the long term affect is they may not get stuck on a disability pension living in a public housing ghetto like my daughter but will get an education or training and are more likely to be in the workforce contributing tax to support the scheme in the future or volunteering helping to keep ours a decent caring society.

How do these three main problems affect you and/or others?

In a couple of words, it has caused ongoing Trauma and permanent harm. My daughter remains an outsider in our society and is treated that way by a range of agencies.

What do you think are possible solutions to those problems?

It needs both education of staff and an agency wide change of attitude to say, if we are wrong we will admit it and rectify it, not employ lawyers with tax payers funds - many of those taxpayers are actually the families of the disabled person they are trying to beat, I think the insurance model comes with an inherent flaw of them wanting to dispute. In our case, our lawyer said the entire time (many months) that she had no idea what NDIS was going to use as rebuttal and in the end they caved as they actually didn't have any rebuttal. The lawyers all won they got paid - my daughter who had already had years of life that was traumatising and shitful won the case and lost everything else big time. Again disgraceful attitude. Still waiting for the apology that will never come. In my view a royal commission to look into the harm this agency is doing should be underway. Just because you do some good should not allow you free range to do significant harm to vulnerable people and their families.

What parts of the NDIS are working well for you?

Now my daughter has a great support coordinator who is well versed in autism, the scheme finally works for her tolerably well. I think all participants who are not neurotypical for whatever reasons should be eligible for support co-ordination until this scheme becomes so user friendly that they re maybe not needed - possibly around 3020!

Is there anything else that you would like to tell the NDIS Review?

Make the disabled person and their family (we have been forgotten completely) the focus. Make care/ reasonable and necessary and future focus be the real approach instead of the combative insurance model that is in place, it is just plain cruel. I guess the penny-wise pound <redacted> approach is what I would like to see change. Why hire a laywers for many months to fight a disabled person that actually would have taken many of thousands of dollars less funding than was in their plan so long as it was altered so they could apply it in a way that it actually worked for their needs. This actually happened to us!