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Submission SUB-C3N1-003530 (Clare Shaw)

Submission reference
Individual's name
Clare Shaw
Submission type
General submission
What are your three main problems or concerns with the NDIS?

Amount of time and effort required for each review
Requiring paperwork for congenital syndromes (they're still deaf, surprise!)
Fairness and equity of assessment

How do these three main problems affect you and/or others?

Lots of paperwork for doctors and allied health professionals
Lots of time spent getting reports and proving disability
For people with limited English or education it is hard to advocate and understand

What do you think are possible solutions to those problems?

Doctors determine length of plan and review date
Suppliers/ health professionals provide a discount for NDIS participants (rather than charge more $) or must be NFP
Medical syndromes need to be classified as a disability
Plans should also consider parents/ carers needs i.e. mental health, cultural background, education, chores, other siblings etc etc

What parts of the NDIS are working well for you?

Early intervention funding is great
I like having control of the funding
Portal is easy to use and read
Most of the planners have been brilliant since changing to allied health professionals

Is there anything else that you would like to tell the NDIS Review?

Early intervention is key to creating an Australia that celebrates diversity and provides equality for people with disability.
I understand it is a huge cost to the people and needs a review but this shouldn't be at the detriment of further dividing those who have and those who have not.
Medical disability is real and should be considered in the planning