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Submission SUB-Z9M8-003453 (Anonymous)

Submission reference
SUB-Z9M8-003453
Submission type
General submission
What are your three main problems or concerns with the NDIS?

1) NDIS is built on choice and control and my experience has been with particular modifications, I've had no choice and control, for example, being a professional diesel mechanic, I had some ideas about how to modify my car and they were not taken into account. Instead I was bought a chair which was approx. $35K and I feel confident my idea would have been less than that.
2) Few providers offering choice over modifications in the home for example. I had a kitchen modified and throughout the process if I was only given two options of builders and then no control over some of the modifications, I was given a budget which kept moving and I was keen to add in additional money to get a good quality materials but was given no option for this. I didn't get chance to see any of the laminate top or tiles that went in, the tap was chosen for me and it was inappropriate, it now produces too much water for the size of the sink.
3) With things like home modifications, there needs to be an project manager within the NDIS who could be 'on my side' to assess and advocate for the work that needs to be completed. This role needs to be funded differently. An NDIS representative would be able to oversee the project, working for the participant and making sure standards are met and the participant is getting what they have asked for.

How do these three main problems affect you and/or others?

This has made my life more difficult. I have been stressed out with dealing with builders, contractors, distraction from everyday life.
Taking choice away is further disabling and is undignified.

Having to follow the guidelines of the NDIS means I have to re-learn specific ways of living. For example, I wanted to buy a new mattress but not a new bed and I have been unable to get that.

What do you think are possible solutions to those problems?

NDIS representative who could advocate for participant.

What parts of the NDIS are working well for you?

The funding is good, it's how you get it and how you spend it.

Is there anything else that you would like to tell the NDIS Review?

Within the NDIS it often feels like I have to prove my disability to get support or low cost assistance. This is further stressful and tiring and exhausting. It can feel like a job.