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Submission SUB-Z9Y1-000501 (Anonymous)

Submission reference
SUB-Z9Y1-000501
Submission type
General submission
What are your three main problems or concerns with the NDIS?

Allied health professionals and coordination services are making a fortune out of disability. The person designing a program of services is the same to recommend and then delivers it. Nowhere else in the federal government would a supplier get to write the procurement that they get to deliver.

Rare and chronic illness doesn't tick a nice box and takes far too long to recognise

A child born with a disability that was unknown is not able to access funding in the early parts of life when it is most critical

How do these three main problems affect you and/or others?

Pushy professionals with more focus on selling their services at the maximum billable rate set by the NDIS deliver sub-par services.

Participants who need to eat and breathe through a tube get denied funding because most assessments seem to discriminate against rare disabilities and only suit common.

In addition to not getting support during the early months of a childs' life parents are forced to fight to get NDIS turned on.

What do you think are possible solutions to those problems?

Recruit and deliver the services in-house as a salaried APS role.

Streamline common disabilities and rare/chronic illnesses seperately with appropriately trained staff to address rare/chronic illness.

Implement emergency fast-track services that can be triggered by NICU wards in hospitals to enable funding for night nurse and / or other immediate requirements on an infant's discharge from NICU.

What parts of the NDIS are working well for you?

When it's setup it works well. Choice in provider so that you can move away from pushy providers more interested in their own funding.

Is there anything else that you would like to tell the NDIS Review?

Changes should be enduring - this shouldn't be allowed to turn into another two-party issue that flip flops like medicare.