Submission reference
SUB-B0D6-000319
Submission type
General submission
What are your three main problems or concerns with the NDIS?
1. Sustainability - how will my 8 year old autistic son be supported into his future
2. Communication - inconsistent communication from the office regarding planning and funding
3. Proof - having to prove my son's lifelong condition can be detrimental to not only his mental health but also mine as his primary carer
How do these three main problems affect you and/or others?
Stress and anxiety
What do you think are possible solutions to those problems?
Involve parents, autistics and peak bodies on the joint standing committee and make a clear actionable plan to sustainability
What parts of the NDIS are working well for you?
We have been in the scheme for four years and this has given my son the early intervention and supports he needs on a daily basis.
Is there anything else that you would like to tell the NDIS Review?
Inclusion, inclusion, inclusion. Envolve voices of parents, those in the scheme and the reputable peak bodies that can advocate across the board and severity.